
{"id":25032,"date":"2025-10-14T15:05:30","date_gmt":"2025-10-14T13:05:30","guid":{"rendered":"https:\/\/fondazioneroberthollman.it\/migliorare-i-percorsi-di-cura-delle-persone-con-disabilita-visiva-lungo-tutto-larco-della-vita-il-tema-del-workshop-ern-eye\/"},"modified":"2025-10-28T13:31:55","modified_gmt":"2025-10-28T12:31:55","slug":"migliorare-i-percorsi-di-cura-delle-persone-con-disabilita-visiva-lungo-tutto-larco-della-vita-il-tema-del-workshop-ern-eye","status":"publish","type":"post","link":"https:\/\/fondazioneroberthollman.it\/en\/migliorare-i-percorsi-di-cura-delle-persone-con-disabilita-visiva-lungo-tutto-larco-della-vita-il-tema-del-workshop-ern-eye\/","title":{"rendered":"Improving care pathways for people with visual impairment across the lifespan: the theme of the ERN-EYE workshop"},"content":{"rendered":"\n<p>The eighth ERN-EYE 2025 Scientific Workshop was held on October 6 and 7, 2025 at the <strong>Robert Hollman Foundation<\/strong> in Padua, Italy, bringing together clinicians, researchers, rehabilitation specialists, and patient representatives from across Europe.<br\/>Over the course of the two days, participants examined how to improve assessment, diagnosis, and care pathways for people with visual impairment from childhood through adulthood.<\/p>\n\n<p><strong>Day 1 &#8211; Childhood and transition to adult services<\/strong><\/p>\n\n<p>The first day was mainly devoted to <strong>visual impairment in children<\/strong> and managing the <strong>transition from pediatric to adult services<\/strong>.<\/p>\n\n<p>Speakers addressed the challenges and opportunities related to pediatric visual impairment, including:<\/p>\n\n<ul class=\"wp-block-list\">\n<li>The impact of visual impairment on neuropsychological development<\/li>\n\n\n\n<li>Advances in the assessment of visual function, such as the use of eye-tracking technology<\/li>\n\n\n\n<li>The methodologies of vision assessment in children with developmental disabilities<\/li>\n\n\n\n<li>Early intervention strategies and understanding parents&#8217; needs<\/li>\n<\/ul>\n\n<p>In the afternoon, the focus shifted to<strong>accessibility in education<\/strong>, <strong>&#8220;reflection-based&#8221; rehabilitation approaches<\/strong>, and <strong>quality-of-life assessment tools<\/strong>, such as the European project <em><a href=\"https:\/\/fondazioneroberthollman.it\/en\/seemylife-the-european-project-on-quality-of-life-of-children-and-youth-with-visual-deficit\/\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>SeeMyLife<\/strong><\/a><\/em>.<\/p>\n\n<p>A session devoted to the <strong>transition<\/strong> from childhood to adulthood presented reference models drawn from <strong>ERN ReCONNET<\/strong>, Irish guidelines and practical case studies, culminating in a <strong>plenary discussion<\/strong>.<\/p>\n\n<p><strong>Day 2 &#8211; Care and rehabilitation in adulthood<\/strong><\/p>\n\n<p>During the second day, speakers covered the <strong>assessment and management of visual impairment in adulthood<\/strong>, focusing on:<\/p>\n\n<ul class=\"wp-block-list\">\n<li>Common clinical scenarios in adults with rare eye diseases<\/li>\n\n\n\n<li>Reliable test methods for low and ultra-low vision<\/li>\n\n\n\n<li>Patient-reported outcome measures<em>(PROMS<\/em>)<\/li>\n\n\n\n<li>The role of mental health in the treatment of rare eye diseases<\/li>\n<\/ul>\n\n<p>The session on <strong>Rehabilitation Pathways<\/strong> presented innovations in low vision services, the role of <strong>Eye Care Liaison Officers (ECLOs)<\/strong>, the results of the <strong>ERN-EYE Survey on low vision services<\/strong>, and advances in <strong>optical and digital aids<\/strong>.<\/p>\n\n<p>The day concluded with a discussion on <strong>new assistive technologies<\/strong>, <strong>hybrid models of telerehabilitation<\/strong>, and <strong>patients&#8217; perspectives<\/strong> on rehabilitation needs and expectations.<\/p>\n\n<p>David Keegan of the ERN EYE board said, &#8220;We had a fruitful and very inspiring meeting of the <strong>ERN-EYE<\/strong> group in Padua, Italy, at the <strong>Robert Hollman Foundation<\/strong>, hosted by our colleague <strong>Agnese Suppiej<\/strong>.<br\/>It was inspiring to hear about all the work being done in the field of inclusion and supportive therapies for children with <strong>low vision or blindness<\/strong>, including <strong>family support and education<\/strong>.<\/p>\n\n<p>The workshop concluded with a shared commitment to <strong>strengthen early diagnosis<\/strong>, <strong>improve coordination of care across all life stages<\/strong>, <strong>expand access to rehabilitation and assistive technologies<\/strong>, and <strong>put the patients&#8217; perspective at the center of<\/strong> care for Rare Eye Diseases in Europe.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The eighth ERN-EYE 2025 Scientific Workshop was held on October 6 and 7, 2025 at the Robert Hollman Foundation in Padua, Italy, bringing together clinicians, researchers, rehabilitation specialists, and patient representatives from across Europe.Over the course of the two days, participants examined how to improve assessment, diagnosis, and care pathways for people with visual impairment [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":25033,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"_uag_custom_page_level_css":"","footnotes":""},"categories":[148,149],"tags":[138,282,283,284,285],"class_list":["post-25032","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-training","category-events","tag-foundationeroberthollman","tag-ern-eye","tag-low-vision","tag-blindness","tag-malattierare"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ 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